Sunday, February 28, 2010

Valiant Hearts with Rhythm

Today I submitted a story about Cache to the website called One Life, One Legacy. I can not think of a better way to share Cache's story and show him just how brave and special he is. This web site picks a few special people and makes a shirt with their "slogan". Cache's is "Valiant Hearts with Rhythm". He has nothing short of a brave heart and lives his life full of rhythm. They will soon post his story to there blog. I hope all of you go on and tell them just how great he is. So when they do make his shirt, we can all get one. Here is the story I submitted.

Cache is an amazing brave child! I call him our life savor and hero. I can not begin to describe how much this child has and will endure in his life time. Cache was born at 37 weeks, 7 pounds 14 ounces, 19.5 inches long, and came out fighting.

When I was 32 weeks along his heart rate had dropped dangerously low. After many tests and a big scare they decided that he could be monitored for a few weeks until he was ready to come out. When I was 36 weeks they decided to induce me. They knew something was wrong with his little heart, but they were not sure what. Less then 12 hours after birth he was being transferred to the pediatric hospital, and I was being discharged. When we arrived at the hospital we were told that my son had a genetic heart condition called Long QT. Enable for him to be on the medication to save his life, he needed a pacemaker. Three days after birth, my son was going in to have open heart surgery. A few days later his heart began to reject his pacemaker and they had to go in again and drain the fluid building up around the heart. My superman made it though the first month of his life in the NICU and was soon able to come home. This is where his journey has begun.

Cache has two genetic dispositions of Long QT. Long QT1 and Jervell Lang-Nielsen syndrome. When Cache was 2.5 years old he was diagnosed with sever to profound deafness. This is a side effect from the Jervell Lang-Nielsen syndrome. Although his ability to speak is a challenge for him, he does not let anything stop him from living his life.

In July 2008, Cache had a deadly arrhythmia, but we were blessed by angels and his heart bounced back. In November 2008, another surgery was performed to place a defibrillator and have a sympathectomy performed. He did well and has never had another arrhythmia since.

Today, I am sitting in a hospital room because my son’s defibrillator was removed due to an infection. We will be in the PICU (pediatric intensive care unit) for 2-6 weeks trying to get rid of the infection. After the infection is gone he will be having his 5th heart surgery to place a new defibrillator. When I saw this website, I knew this would be a great way to tell everyone what a brave and amazing child my son is. By him enduring so much in his short 4 years of life, he has saved his brother, sister, uncle, and cousin’s lives, as they too all live with Long QT. Without his trials we would have never known about this silent killer that takes so many young ones lives. It is now our mission to inform people about Long QT and try to save lives. We are truly blessed by him and he is our brave hero and life savor. He lives his life to the fullest and never lets all his trials get in his way. Anyone who has met him will tell you he is an inspiration and full of courage. He has made our world a better place.

Valiant Hearts with Rhythm


Lisa said...

I love your story! He is amazing! I would really like a t-shirt with Cache man on it!!

Natalie said...

Cache truly is a little fighter. You and your family are fighters too. How strong you must be from all your trials! I hope you get a shirt with Cache's slogan on it. That would be really cool!