Miller Time: Cali So Far...

Sunday, February 10, 2008

Cali So Far...

It is so beautiful here. The sun is so nice to see. It has only been 1 night and I totally miss my boys! Today we went to Eric's uncle John's house. It was a long drive there and I was actually a little nervious, I guess not know what it would be like. I will for ever remeber the drive there as The Doors were playing on the radio. I thought for sure I would loose it when I walked in the door, but Uncle John and Aunt Robin were doing amazingly well. They had hunndreds of pictures of Josh out and it was nice to see his smile through all his years. He had an amazing smile! Sadlly enough I only had to the chance to see it 8 years. I think they enjoy having company, and they say it gets them through the day. I could not even imagin what they are going through. They are truly amazing people and a wonderful famliy. I only wish there was something more I could do for them. We sat and watched the vidieo of Josh that will be playing at the funeral and I don't think there was a dry eye in the room. We are going to go back up to there house tomorrow to visit and see if there is anything we could do to help get ready for Tuesday. Here is his obituary...

Joshua Wade Kiger
Age 20, born July 20, 1987, passed away on February 4th, 2008. Joshua grew up in Corona/Norco. He attended Norco High School. Josh enjoyed snowboarding and rock jumping on Lake Mead. He also liked to golf, play on the computer, playing video games and just hanging out with his friends. Josh is survived by his parents John and Robin, brother Jake, sister Rylee-Kate, grandpa Roy, nanny Louise, grandma JoAnn, uncles Kim, Steve, Mark, Ron, aunts Connie, Gwen, Susan, Patty, Cheryl, cousin Eric and his wife Melissa, cousins Kyle, Jeff, Greg, Michael, Amber and Brea and their families. The Funeral service will be held at Church on the Hill, 2000 Norco Drive, Norco, California, on Tuesday, February 12th, 2008 at 11:00 a.m. There will be a viewing after the service and then a Celebration of Life will be held in the Activities Hall at the church.

Here is another picture that will brighten this post up...

That was taken on my cell at Uncle Johns and Aunt Robins. They all thought she was such an angel and she is!

Todays Rating: Sad :(

1 comments:

Lisa said...: I wish that you could be there with the beautiful weather under better circumstances.
I am so sorry for the loss the Miller family has suffered. He sounds like a really neat kid.

She is an angel and her Aunt CC misses her.; February 11, 2008 at 8:41 PM

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Our Long QT Syndrome Story

My teenage years were full of sports and exercise. There was not a day that went by I didn’t have some sort of game or practice. My days consisted school, track, soccer, a jog, and finished up with some strength training. Never would you have guessed my heart was broken. I was older, married and about to have my second child, Cache. I was off to my usual 32 week check-up at my obstetrician office. That was the day our lives changed forever. It was that exciting moment when you get to hear that slushing heart beat and know that the big bump in your belly is this living being in your body. That slushing sound turned out to be my nightmare. My doctor explained to me that the baby’s heart rate was far too low and that my son had something wrong with him. This is something you never expect to hear when you are having a baby. Babies don’t come out sick? At least that was my naive way of thinking. My doctor told me to walk over to labor and delivery and he would meet me there as soon as he was finished with patients he had in his office. When I got to Labor and Delivery, they strapped me up to all these machines, and I had instant panic around me. Nurses were rushing around and almost screaming. All I could do was sit there and wonder what was going on. Next thing you know I was being prepped for an emergency C-section. That was until my doctor walked in the door and told them all to calm down. It was a sigh of relief. My doctor performed an ultra sound along with what felt like another 30 doctors. They all agreed with one thing, my baby was fine for now and needed to stay right where he was. He stated that there was something defiantly wrong with his heart, but until he was born they would not know what. After 36 weeks and lots of daily monitoring and doctor visits, I was induced and my beautiful little boy Cache came into the world fighting like a champ. The next few hours were about to change our lives forever. Cache was diagnosed with Long QT syndrome a few hours after birth and was immediately transferred to Sunrise Children’s Hospital. I was discharged and headed there to figure out just exactly what was to happen next. There we were greeted by the pediatric cardiologist who had done an ultrasound on Cache’s heart in utero. He began to explain the details of Long QT syndrome and how they treat it. He then told us they could not treat Cache because his heart rate was already dangerously low. To fix this, our son was to have open heart surgery and have a pacemaker placed. A pacemaker, isn’t that for old people? We were numb and just in a really bad dream. Three days after our perfect son’s birth he was placed with a pacemaker in his little tiny tummy. I remember that day clearly and as I held him waiting for the surgeons, Landslide by Fleetwood Mac was playing on the radio. It was a Saturday morning and we meet the surgical team. They answered all are questions and we walked my infant son down a long hall. We gave him a kiss and we said good-by. The hospital waiting room was a ghost town. We waited, and waited, and waited, and then did a little more waiting. I clearly remember seeing the whole surgical team walk into the deserted waiting room. My heart sank and I think my knees nearly hit the floor. Why were all of them coming in? Why did they all need to talk to us? As we approached them the head surgeon said “Everything went great.” The best words we had heard our whole lives. I am not the “reach out and give a hug to a stranger” kind of girl but I did just that. The next few weeks, after Cache’s pacemaker placement, had its up and downs. His heart rejected the pacemaker and fluid began to build around his heart. They eventually had to go in and put a drain in to his heart to relieve the fluid. We had trouble with feeding and jaundice. It was three weeks to the day that my son was able to come home and have his two older brothers hold him for the first time. Life with Cache has proven to be a challenging one. Cache never passed a newborn hearing screen and while most parents would be freaking out about this, we had much bigger fish to fry. We were told at the time of his birth that Cache could have a very rare form of Lonq QT Syndrome called Jervell and Lange-Nielsen syndrome. This rare form of Long QT Syndrome causes sever to profound hearing loss. At about the age of three, this was confirmed through genetic testing but Cache also carries another genetic strain as well, Long QT Syndrome type 1. No one, as of then, had ever carried these two genes on the national registry. He had a double dose. It was also confirmed that I too had Long QT Syndrome type 1 and so did my other two biological children. Through the years Cache has had many obstacles he overcame. At the age of 2 ½ he had a deadly arrhythmia and was lucky to be alive. After that arrhythmia, it was then decided Cache needed his pacemaker replaced with an Implantable Cardiac Defibrillator (ICD) and have a left cardiac sympathetic denervation. It was a little over a year after the ICD placement in his stomach that it became infected. The ICD was removed and he was placed in the Pediatric Intensive Care Unit for a week until it was decided that he was big enough to have an ICD implanted in his chest. A few weeks later he had to go back in and have pieces removed that had been left in him on accident. Cache is a thriving child and plays like any other child. We have been very blessed and we all consider him our life saver. He not only saved his Mom, brother, and sister, but his Uncle and three cousins. I am the luckiest Mom in the world to be Cache’s Mom. He has given me far more then I could ever give him. Cache inspires people with his amazing smile, big blue eyes, and love of life. Cache has taught us and everyone surrounded by him that life is far too short and life is more than just the daily grind. It is about living life to the fullest and making sure those who you love, know you love them. It is about today, and living in today, not about what can happen in the future. We have today and that is all we need to get to tomorrow.

Miller Time

ERIC-MELISSA-YORK-MASON-CACHE-DYLANN

Sunday, February 10, 2008

Cali So Far...

1 comments:

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Our Long QT Syndrome Story

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